2020 will be our SIXTEENTH year walking with Faith at the Cystic Fibrosis Foundation's Greatstrides Sacramento Walk as Team FaithFull!!! We have raised well over $143,000 in that time thanks to a multitude of generous donations, walkers and teams for Faith, made many new friends, and helped get CF on the newborn screening test in CA.
This year's exciting news: Trikafta was approved in 2019 and is a LIFE CHANGING drug that so many people with CF have been waiting for and what we've been fundraising for!!! Though we've decided to hold off on Faith taking it for a few more months while we observe side effects and research, we are excited as ever for her future!
We have seen HUGE progress over the last few years in research and treatments, but there is still so far to go as we continue to lose lives to CF every day.
We fundraise and spread awareness for our daughter Faith (and the thousands of others who battle CF), so she can have the chance to live a HEALTHY, hopefully LONG life. We all have struggles, but we have watched her over the years take CF in stride, fighting it when she needs to and being patient in tolerating it all the other days of her life. She is truly an inspiration, an angel and our hero. As her mother, I strive to see and live life more like her. Join one of our teams and help add tomorrows!
There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends and co-workers who struggle every day just to breathe. We walk for them. Will you join us? All we need you to do to become a member of our team is click on one of the team buttons above. From there you can make a donation and start your fundraising.
By becoming a member of our team and making a donation, you are joining a growing group of people committed to finding a cure for cystic fibrosis. Together, we are adding tomorrows to the lives of people living with CF by supporting the search for a cure. Feel free to share any of the information you find on this site.
Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families.
Below is a beautiful 2.5 minute video that won an award in the UK for the CF Trust (Foundation).
This year's exciting news: Trikafta was approved in 2019 and is a LIFE CHANGING drug that so many people with CF have been waiting for and what we've been fundraising for!!! Though we've decided to hold off on Faith taking it for a few more months while we observe side effects and research, we are excited as ever for her future!
We have seen HUGE progress over the last few years in research and treatments, but there is still so far to go as we continue to lose lives to CF every day.
We fundraise and spread awareness for our daughter Faith (and the thousands of others who battle CF), so she can have the chance to live a HEALTHY, hopefully LONG life. We all have struggles, but we have watched her over the years take CF in stride, fighting it when she needs to and being patient in tolerating it all the other days of her life. She is truly an inspiration, an angel and our hero. As her mother, I strive to see and live life more like her. Join one of our teams and help add tomorrows!
There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends and co-workers who struggle every day just to breathe. We walk for them. Will you join us? All we need you to do to become a member of our team is click on one of the team buttons above. From there you can make a donation and start your fundraising.
By becoming a member of our team and making a donation, you are joining a growing group of people committed to finding a cure for cystic fibrosis. Together, we are adding tomorrows to the lives of people living with CF by supporting the search for a cure. Feel free to share any of the information you find on this site.
Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families.
Below is a beautiful 2.5 minute video that won an award in the UK for the CF Trust (Foundation).
Below is One Republic's video "I lived." They chose to tell the story of a young man living with CF. It just so happens that we used the SAME song well before this video came out for Faith's video last year!
Below is Faith's fundraising video from 2012.
